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Engaging Patients to Advance Diagnostic Excellence: A Workshop

In formation

The National Academies Forum on Advancing Diagnostic Excellence will host a public hybrid workshop to explore opportunities for engaging patients, caregivers, and families in the diagnostic process to improve patient safety and reduce diagnostic errors. Discussion topics may include: educating and empowering patients and families to actively participate in diagnosis; integrating shared decision-making; leveraging technology and diagnostic innovations to better understand symptoms and inform clinical decisions; training health professionals to strengthen communication and collaboration with patients; and assessing the impact of engagement on the diagnostic process and health outcomes.

Description

A planning committee of the National Academies of Sciences, Engineering, and Medicine will organize and conduct a public workshop to explore opportunities to facilitate effective patient engagement to improve diagnosis in the U.S. health care system. Workshop participants will consider the opportunities and challenges of actively involving patients, caregivers, and family members in the diagnostic process to enhance patient safety and minimize the risk of diagnostic errors.
The workshop may feature invited presentations and discussions on:

  • Opportunities to provide education to patients, caregivers, and family members to help them engage in the diagnostic process, by learning how to share feedback, express concerns, and meaningfully contribute to diagnostic decision-making;
  • Delivery of patient-centered care that incorporates individual preferences, goals, and concerns; addresses the diverse and complex factors contributing to health disparities, and integrates shared decision-making throughout the diagnostic process;
  • Opportunities and challenges of technology and diagnostic innovations to support patient engagement, including the use of artificial intelligence in clinical decision support tools (e.g., ambient medical scribes); improving access to electronic health records, clinical notes, and diagnostic test results; and encouraging patients to use digital health tools to better understand their symptoms and inform diagnostic decisions;
  • Professional education and development to strengthen active listening and communication skills during patient-clinician encounters, improve the clarity and transparency of diagnostic communication, and support more effective collaboration among patients, families, and health care professionals particularly frontline health care professionals who have more frequent and extended contact with patients;
  • An assessment of the impact of patient and family engagement on the diagnostic process and exploration of potential strategies to incorporate patients' lived experiences into diagnosis-related research.

In accordance with institutional guidelines, a designated rapporteur will prepare a proceedings-in brief of the workshop based on the presentations and discussions during the workshop. The proceedings-in brief will be subject to the National Academies review procedures prior to release.

Collaborators

Sponsors

ABIM/ABIM Foundation

American Academy of Physician Associates

American Association of Nurse Practitioners

American College of Radiology

College of American Pathologists

Doctors Company Foundation

Gordon and Betty Moore Foundation

Patients for Patient Safety US

Radiological Society of North America

The John A. Hartford Foundation

The Mont Fund

Staff

Jennifer Flaubert

Lead

Adrienne Formentos

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